Resources

Although our ultimate goal is to find a cure for synovial sarcoma, L4OF is also committed to providing practical resources for patients and families who are encountering the challenges associated with the unique stages of their own journey.

Our Experience

As Tim’s parents, our journey with synovial sarcoma presented challenges and hardships every step of the way. We want to share some of these experiences and what we learned with the desire to help you navigate your own difficult journey as parents with understanding and courage.

Tim's Room

Tim's Room is based on an important stage of patient care that is often overlooked – creating a loving and comfortable space / home environment for families needing hospice and palliative care support. The Foundation provides design and resources that will maximize comfort, quality of life, clinical care and family interaction during this crucial stage of the journey. Need more information?

Interested in participating in the ShareMD Patient Registry?

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